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Frequently Asked Questions and Answers


Why does S.C. have a short fall of ADAP funds?
Why should the state provide this funding?
How is HIV/AIDS different (than heart disease, cancer, etc) and why does it deserve more resources?
How will the $8M be used? Is this one-time or recurring funds?
What will be the return on our investment? What are the estimated savings to SC (short term and long term) if $8M is appropriated?
What are the estimated costs to hospitals of untreated HIV disease/late treatment?
What is the impact of the ADAP wait list on clients?
What is the impact of the ADAP wait list on HIV out-patient providers/case managers?
What is the impact of the ADAP wait list on hospitals?
What is the impact of the ADAP wait list on Medicaid?
If pharmaceutical companies provide ‘bridge’ benefits through patient assistance programs until a client can get on ADAP (or Medicaid, Medicare, etc), then why does the state need to pay more for ADAP to eliminate/prevent a wait list?
Will South Carolina receive more funds with the reauthorized Ryan White CARE Act?
Are any persons on the ADAP wait list eligible for Medicaid or Medicare D?

Why does S.C. have a short fall of ADAP funds?
• HIV drug therapy has increased both the life-expectancy and cost of care for persons living with HIV. Nearly 75% of early HIV care costs are for HIV medications, until a person develops AIDS then other drugs and hospitalization costs are the largest portion of care costs.
• Federal funding for AIDS Drug Assistance Programs (ADAPs) have not kept pace with the demand for medications. Many ADAP programs across the country and in S.C. face budget shortfalls. Other Southern states invest much more state funding in ADAP than S.C.: NC - $12 M; GA - $11M; TN - $3M; and AL - $5M. SC - $500,000.
• The South has greater challenges for all HIV services due to greater poverty, more rural, less city/county and private funding, and reduced federal Ryan White dollars comparatively. It costs more to provide care services for persons who are indigent and living in more rural areas.
• Many persons are with HIV are uninsured or low income who must rely on Medicaid, Medicare, disability insurance, federal Ryan White Care Act, and the AIDS Drug Assistance Program (ADAP) to receive necessary treatment.
• Most Federal funds for HIV medical care are allocated to states based upon where a person was diagnosed. Many HIV-infected persons are diagnosed in large urban areas and then return home to rural areas for family support (Southern State Manifesto, 2003). S.C. does not get its equitable share of limited federal funds to support HIV care for persons who have come here since their initial diagnosis. Example: Of 15,865 persons living with HIV at end of 2005,
2, 273 were diagnosed out of state and have/are receiving care in S.C. but are not counted in the formula for our Ryan White funding.
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Why should the state provide this funding?
• HIV costs our state more than $6 billion ($151 million in medical care and $5.7 billion foregone earnings in 2002).
• If South Carolina is going to move forward with economic development and improving the health of our families, we must address HIV (sickness has a cost). It makes good business sense, good economic sense to provide funds for services that can reduce these costs.
• One in four people in S.C. are on Medicaid and the number continues to grow as poverty rates increase. Medicaid is the largest source of public funding for HIV medical care. Medicaid paid for half all S.C. HIV-related hospitalizations (51%) in 2004.
• The longer S.C. waits to fund early HIV treatment and care, the more it will cost our state: increased unrecovered hospital costs, more Medicaid costs, less healthy workforce especially in more economically challenged counties. And, increased employer/private insurance costs for hospitalizations will occur from cost-shifting to cover indigent HIV care charges, e.g. mean chargein 2004 for uninsured patients was $32, 980 vs $45,946 for private insurance patients (SC Hospital Discharge Summary data). While the number/type of procedures may be more with private insurance patients, these are not likely to account for all of the difference in charges.
• An untreated HIV-infected patient will progress more quickly to advanced disease (AIDS). Annual costs for patients with advanced illness can cost 2.6 times more than care for patients in earlier stages. This increased cost is due to hospitalizations and other needed medications.
• Estimated medication and care costs for persons with early disease are about $15,000 per person per year (includes $10,500 for annual HIV medication/ADAP costs per patient). Cost of late stage disease ranges between $30,000 - $40,000 per patient/per year. For an investment of about $15,000 per patient a year for early ADAP and care services we can save about $25,000 per year per patient in additional drug and hospitalization costs needed for persons with advanced disease.*
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How is HIV/AIDS different (than heart disease, cancer, etc) and why does it deserve more resources?
• HIV is a communicable, chronic disease – thus it is different than cancers, heart disease, diabetes, and other costly diseases handled by public health.
• Medications are preventive – persons with HIV can inadvertently transmit the virus to others; transmission reduces for people in care and on treatment as they have less virus in their system and can learn steps to protect others.
• Other diseases do not have the stigma that HIV does – it is still judged by many. Stigma prevents many persons from accessing and staying in care, and to get tested when they are in early stages of disease.
• HIV disproportionately impacts young adults and women of childbearing age. Most people with HIV in S.C. are in their 20’s – 40’s. This results in significant foregone earnings when people get sick and can’t work. The average person with HIV in our state will ‘lose’ 31 productive-work years and lose an average $454,465 of foregone earnings.
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How will the $8M be used? Is this one-time or recurring funds?
• $5 million recurring funds will supplement federal ADAP funds and eliminate the wait list. Note: $3,864,000 is needed to remove 368 persons from the wait list. The annual cost of medications per person averages $10,500 (368 x $10,500 = $3,864,000). However, to avoid instituting a wait list again in next year, DHEC 's FY08 budget request is for $5 million to meet demand for the program due to NEW cases diagnosed, more current ADAP clients living longer/staying healthy, and due to newer, more effective drugs being approved by FDA (which are likely to be more expensive.
• $3 million recurring funds is for core HIV services needed to ensure 100% access to ADAP/HIV treatments. S.C. received about $1 million less funding in 2006 for care services than in 2005. HIV providers need a base level of funds to care patients, determine when to begin treatments,and help minimize side effects of medicines. $3 million will be used to restore funding levels and provide core service needs for an increasing number of patients.
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What will be the return on our investment, and What are the estimated
savings to SC (short term and long term) if $8M is appropriated?

Investing in ADAP and HIV care will:

  • Save money - for Medicaid, Hospitals, HIV care system, patients and families.
  • Help get people back to work - and off of public assistance programs, Medicaid.
  • Help prevent new infections - treatment lowers amount of virus.
  • Lengthen and improve lives - more years of earning potential.<.li>
  • Garner more federal funds - for match requirement if S.C. gets more Ryan White funds.
• $8 million can help ensure 100% access to HIV medications. 100% access to HIV medications is cost-saving: it decreases years of life of lost and lowers productivity losses. Early treatment and care will save S.C. billions in the total cost of HIV illness.
• 100% access to HIV treatments for the 368 persons on the ADAP wait list as of 1-9-07 can result in annual cost- savings over $8 million for medical care costs to treat advanced disease.
• Each case of HIV prevented, saves over $600,000 in direct medical care and foregone wages (cost of illness burden to S.C.).
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What are the estimated costs to hospitals of untreated HIV disease/late treatment?
• Hospital costs for persons with advanced HIV disease are nearly 6 times more than for persons in earlier stages. The estimated annual medical care cost per year per patient with AIDS is $30,000 - $40,000. Hospital costs are 14 – 23% of this amount.
• Hospitals in South Carolina have an estimated $19 million of unrecovered costs (difference between charge and reimbursement amount) for HIV related visits for Medicaid and uninsured patients (2004). Note: unrecovered cost figure is an estimate, and the amount of this ‘loss’ that may be shifted to private pay charges is not known.
• Rural hospitals are bearing a disproportionate share of the economic impact, contributing to their already fiscal crisis causing many to face closing. Colleton, Orangeburg, Georgetown, Laurens, Newberry, York, Dillon, Lancaster, and Calhoun counties had hospitalization costs (charges) in 2002 exceeding the state average for rural county hospitals.
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What is the impact of the ADAP wait list on clients?
• The inability to obtain a steady access to medications to stay healthy and working creates undue hardship that impacts individual patients and families.
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What is the impact of the ADAP wait list on HIV out-patient providers/case managers?
• Staff are spending significant time and effort to help persons on the wait list obtain medications. Case managers may spend up to 90% of their work-week helping patients apply to pharmaceutical company Patient Assistance Programs. This means many other needs are not met such as mental health or dental health.
• When staff can’t stabilize clients, it will lead to increased systemic ancillary costs such as more people on food stamps, more people without housing, more people accessing emergency room care, and fewer available case management hours to work directly with people accessing care for the first time.
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What is the impact of the ADAP wait list on hospitals?
• More patients may access care in emergency departments (more costly), and increases the stress of hospital social work staff to coordinate services and link patients to assistance programs and other services.
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What is the impact of the ADAP wait list on Medicaid?
• Case managers routinely screen patients for Medicaid eligibility and assist those who are eligible to apply. Persons not eligible for Medicaid will apply to ADAP (and be put on wait list).
• Over time, the ADAP waiting list can lead to an increase in the number of people who become eligible for Medicaid due to strains in the care system, and persons getting sicker. This will stress the Medicaid system further.
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If pharmaceutical companies provide ‘bridge’ benefits through patient assistance programs
until a client can get on ADAP (or Medicaid, Medicare, etc), then why does the state need to pay
more for ADAP to eliminate/prevent a wait list?

• Antiviral treatment requires a combination of 3 optimal drugs. Trying to access your medications through patient assistance programs (PAPs) is not the best approach. These programs require people to apply often, sometimes monthly, and separate applications must be sent to the manufacturer of each medication needed. For someone on a multiple drug regimen, this process can be quite cumbersome and may not provide the full range of drugs necessary for optimal clinical outcomes. The lack of suitable medication choices, restricts the ability to place a patient on HIV therapy and minimize development of viral resistance.• HIV care becomes more expensive when fewer drugs can be used to treat HIV. Greater sickness leads to increased Medicaid and insurance costs (from hospitalizations and more costly treatments).
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Will South Carolina receive more funds with the reauthorized Ryan White CARE Act?
• Federal funding for ADAP and HIV care services comes from the Ryan White CARE Act, which was reauthorized in December 2006. Final funding levels for ADAP and care services in South Carolina for 2007/2008 will not be known until early April 2007.
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Are any persons on the ADAP wait list eligible for Medicaid or Medicare D?
• Ryan White/ADAP is the payer of last resort, therefore, local case managers and ADAP program staff screen all applications for the program to see if a client is eligible for Medicaid and/or Medicare D full low income subsidy. If so, staff assist clients to access benefits/medications through these other programs.
• Very few (perhaps 5 or less) of the persons on the wait list are likely to be eligible for Medicaid at this time.
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AID Upstate | Post Office Box 105 | Greenville, SC 29602
800.755.2040 | 864.250.0607 | 864.250.0608(fax) | info@aidupstate.org